What's in a name?

You've probably heard of the Fortune Cookie game – add 'in bed' to the end of any fortune from a cookie to make it more exciting. Well, I'm hoping that my love of books and beautiful writing will help me cope with chronic migraines.

Saturday 28 June 2014

'We could never learn to be brave and patient, if there were only joy in the world.' – Helen Keller

It's been about three weeks since my last migraine and, although I'm very grateful and relieved the flare-up is over, I worry. The vigilance each day about the naturalness of what I eat and how much water I drink is waning. I guess it's natural that you can't stay on alert all the time, do calculations of consumption every hour. Preservative-ridden convenience foods are quicker to make when I'm hungry and tired from work. Chocolate and bread are delicious and it's draining to constantly resist. It makes me worry, though, that I'll inadvertently do something to trigger the next migraine – or more precisely the next cycle of constant migraines. I know I could probably handle one migraine, but I don't really believe that they will come singly again.

I've experienced this dread and doubt before: after other flare-ups, when recovering from depression, when dealing with PTSD-related flashbacks. I have to remind myself that I'm stronger than I think. I have control over what I eat and drink, and can mitigate that trigger at least.

Sometimes I forget or downplay how big an impact the last few months have had. In an effort to be tough, not a whinger, I push aside classifications of 'serious' or 'traumatic' to describe this chronic migraine flare-up. They sound like over-dramatic, self-pitying labels.

Regardless of how I think about the early half of this year, I am glad to be moving on, but I also need to be kind, gentle, with myself – both about my waning hyper-vigilance and about the remaining emotional fall-out.

Thursday 19 June 2014

'Medicine sometimes snatches away health, sometimes gives it.' – Ovid

I have mixed feelings about my new migraine medication, sandomigran.
On one hand it's working really well on my chronic migraines. When my neurologist prescribed it, he warned me that the side-effects included sleepiness, constipation and weight gain. I wasn't too worried about the sleepiness because I often don't sleep very well. As it's turned out, they should be called twenty-minutes-awake pills. I fall asleep almost as soon as I take them. Constipation hasn't been an issue. The weight gain is the one occupying me right now. I wasn't worried about gaining a little weight because I had lost a bunch of weight over the last few months of being constantly nauseous from migraines. The upside is that I now eat anything I want, as much as I want. I almost never feel full. I've realised I need to use visual portion control to make sure I don't balloon up too much. I've also implemented a low-carbs and no dessert after 8pm diet. Hopefully I have the will power to maintain this plan.

Sunday 15 June 2014

'"Thank you" is the best prayer that anyone could say.' – Alice Walker

The reason I'm feeling thankful tonight is because I haven't had a migraine in a week and a half (knock on wood). This is despite doing several things in the past week that often would lead to a migraine: shopping in the city all day, teaching a class with new material and forgetting my pills one night. Based on all this, I'm going to declare the combination of my new medication and kinesiology a success.

Thursday 12 June 2014

'Strength is the outcome of need.' – H.G. Wells

I'm playing mind games with myself at the moment. This always happens after I've had a prolonged illness or condition. I get hyper-sensitive to signs that the condition might be coming back. So because I've had such persistent and debilitating migraines for the past few months, I'm trying to look for any sign that I might be getting a migraine while simultaneously trying to enjoy every migraine-free moment. I know this vigilant dual-personality will ease as the new medication and kinesiology brings consistent improvements, but for now there's a lot going on in my head. Despite that I'm extremely grateful that things are improving and I've come through it ok. They say adversity makes you stronger so maybe this has added another age ring to my core and toughened me for the next round of adversity.

Tuesday 10 June 2014

'One does not discover new lands without consenting to lose sight of the shore.' – AndrĂ© Gide

I've had three kinesiology appointments now and they've all been very different. The first involved a lot of talking. She made statements like, 'I believe I can get over this problem' and 'I want to get over this problem,' and observed how my body reacted to them. I felt very emotional the night after and did a lot of crying and thinking about issues she had brought up. I thought about the depressed state and negative mindset I was falling into from the endless migraines. Forgiveness and suppression were also key themes so I started thinking about forgiving my mum for a traumatic event that happened in our family a few years ago, just before my first bought of relentless migraines. I also began thinking about forgiveness of my husband's and my part in the shake-up of our marriage last year. Finally, I thought about how I suppress my true quirkiness and desires in order to seem more stable and sensible. Over the following weeks, I began to feel more positive as the unremitting migraines began to ease.

After the second appointment, about three weeks ago, I didn't cry all night or have any major epiphanies, but I kept working on the same issues. In that appointment she used some pressure points and tuning forks and some more emotive statements. She identified suppressed anger as a source of tension. I began keeping an anger diary to record when I felt angry and what I could do about it. I also came to terms with forgiving my mum and initiated a tearful, cathartic conversation. The migraines continued to abate to about one mild episode per week. I was pretty good about doing the yoga-like rhythmic movements she recommended, which were calming and centring.

Today's session involved lots of different pressure points, some massage and muscle manipulation. She continued identifying problem patterns in my thinking such as my habit of inhibiting myself and denying the negative sides of my personality. I am continuing to work on dealing with my anger and not feeling shattered or endangered when others express anger. Also, I will continue the rhythmic movements and meditating on forgiveness with a goal of totally forgiving my husband so we can properly move on. I will continue to track the frequency and severity of the migraines, although it's not a scientific test of whether kinesiology cures migraines since I'm also taking a new, daily medication.

I had a positive experience with kinesiology, which brought many personal issues to light so that I can work on how I react to them. I don't know if I'll go back for another session, but I left each session feeling soothed, positive and more relaxed than I went in feeling. Therefore, I think the whole experience was worthwhile even if it didn't miraculously cure the migraines overnight – a diminishment is a positive favourable too.

Saturday 7 June 2014

'Health food may be good for the conscience but Oreos taste a hell of a lot better.' – Robert Redford

To wheat or not to wheat? That's my question this weekend. I was intending on testing my reaction to wheat today. I had a whole wonderful wheat-concetrated menu planned: waffles for breakfast, then croissants for lunch, ending with quesadillas and naan bread for dinner. It was designed to give me exposure to wheat, but not yeast. Also they're all foods that I have been missing for the past six or so years that I've been gluten free.

The problem is I've chickened out. I've been feeling quite good this week. I think my current (slightly higher) dose of Sandomigran feels like it might be right. Given that, I don't want to wreck things by eating a bunch of food that might send me into a migrainous spiral again.

It's a question of balancing the possibility of future delicious food with the immediate (high) probability of a migraine.